What does it mean to have M.E (Myalgic Encephalomyelitis (M.E.)?

In the UK, it’s estimated that over 250,000 people are living with Myalgic Encephalomyelitis (M.E.), also known as Chronic Fatigue Syndrome (CFS).

M.E. is a long-term, neurological condition that causes a wide range of symptoms — the most common being extreme fatigue, brain fog, and pain. But for many, it’s much more than “just being tired.”

Overview assessment with client

We hear about M.E. often. You might even know someone who has it. But what does it actually mean?

How does it affect someone’s life? More importantly, how can you live with it?

Let’s hear directly from someone who knows.

A Real Story from a Client Living with Myalgic Encephalomyelitis

“M.E., CFS, PVCFS — many names, one long battle with fatigue. But it’s so much more than just tiredness.”

“Imagine that flu or awful cold you once had. You’re past the worst, but still feel like rubbish. That lingering heaviness — that’s M.E., but 24/7, 365 days a year.”

“You might push yourself into work and feel better in a few days. I push myself, and I crash harder. That’s the difference.”

Here are some of the real-life symptoms this client experiences:

• Fatigue like you’ve never known – naps don’t help, they make it worse

• Brain fog – like thinking through cotton wool or sludge

• Insomnia – can’t sleep, even when you’re beyond exhausted

• Concentration issues

• Dizziness

• Noise and light sensitivity

• Temperature intolerance

• Forgetfulness

• Chronic pain – sore throats, weeks-long headaches, joint pain

• Depression – not caused by M.E. directly, but by losing your identity and independence

Fighting for a Diagnosis & Learning to Manage

“First, you fight to be diagnosed. Then, you’re told there’s no cure and very few treatments. The best advice I ever got?Think of your energy like a bank account. If you overdraw, you’ll have to pay it back — with interest.”

What helps when you deal with Myalgic Encephalomyelitis? Practical Tips from Lived Experience

• Acceptance: It’s the hardest part, but the most important. “I miss dancing. But fighting against the condition only makes it worse.”

• Take breaks: Don’t overschedule. Don’t feel guilty for resting.

• Ask for and accept help: You’re not meant to do it all alone.

• Project manage your energy:

  • What’s essential?

  • What can be left out?

  • Write things down — clear your mental clutter.

• Simplify life:

  • Know where things are to avoid wasting energy

  • Combine tasks — if you’re going upstairs, take things with you

    
    

• Use tools and aids:

  • A walking stick not only supports you physically, but it also helps others understand

  • Wheelchairs aren’t a defeat, they’re freedom

  • A Blue Badge saves you energy for the things that matter

  • Use a Nimbus Card for discreet help in public spaces

This is real, real-life experience with someone with ME. It can be really tough at times, but having these excellent little tips may make the difference in leading a good quality of life. If this resonates with you or you would like some support with exercise. Get in touch with us at Prosperity Rehab. We will be happy to help.

How Prosperity Rehab Supports People with M.E.

“Find someone like Kam at Prosperity Rehab — they helped me with gentle, low-impact online exercises that kept me moving without pushing me into collapse.”

We know how difficult it can be to live with M.E., and how isolating it can feel. That’s why we created the Prosperity Health Hub — a supportive, accessible space designed to help people living with chronic conditions stay active, cared for, and empowered.

We’ve just launched a new platform where you can access tailored support, build a sustainable routine, and connect with a real human who understands what you’re going through.

If this story resonates with you, or someone you love is navigating life with M.E., get in touch with us. We’re here to support you — no pressure, no judgment. Just real help from people who care.

You don’t have to do this alone.

Kam – Owner of Prosperity Rehab